"Children are likely to live up to what you believe of them."
~Lady Bird Johnson

"The secret of education lies in respecting the pupil."
~Ralph Waldo Emerson

"Our prime purpose in this life is to help others. And if you can't help them, at least don't hurt them."
~Dalai Lama


Thursday, April 29, 2010

Assume Competence

I mentioned briefly on my other blog that I attended a fantastic seminar by David Pitoynak about two weeks ago.  By fantastic, I mean paradigm shifting.  His way of thinking is not only inspirational but is immensely valuable in the field of advocacy.

Recently, I took on a new advocacy case involving a child who is experiencing Down Syndrome.  The school assumes that the child will not be able to achieve success through inclusion in the general education classroom.  

In my first advocacy case, a child who was experiencing mild Autism was put in a segregated environment because the teachers and administrators in the school assumed he was not able to achieve the academic work that was being presented.

In both of these cases, the assumptions were of incompetence, and as a result both have the possibility of producing damaging results and negative outcomes.

The first child needs to be around typical peers to experience appropriately modeled behavior and feel the social benefits of inclusion.  The second child needs to be effectively academically challenged, especially in the areas where the child is gifted; this child (as can most children) can and will also benefit from appropriately modeled behavior.  And in both children, their inclusion will not only be individually beneficial, but will also help raise the social awareness and open the minds of their peers to also assume competence.

As children, we don't know that someone cannot do something until we are given proof.  We do not look at someone who is different and assume that he or she is incapable of being a friend.  When we are children, we automatically assume competence, albeit often with a lot of accompanying questions.  

Imagine, if you will, that someone looks at you and based solely on your hair color, eye color, shoe size, or waist dimensions that you are unable to participate in the activities of your peers - simply because of your label.  Imagine if every day, you were passed by for opportunity after opportunity just because of an external variable that you have little to no control over.  If you aren't even given a chance to prove your capability, you will probably doubt your own competence, withdraw, and lose interest.  Your potential will go untapped, and your talents will remain undiscovered.

Now, think about what would happen if everyone was just given a chance.  Sure, it might take a little extra effort from some of the involved parties, but if you assume that there is at least a possibility that success can be achieved, imagine how much the world has the potential to change.  Imagine what could happen if we assumed competence, much in the way our children's peers do, and think about how inclusive we could all become. 

In the seminar I attended, David Pitonyak talked extensively about Assuming Competence, which is also known as the Least Dangerous Assumption.  You can google both of these terms and be given thousands of hits that will give you extensive, eloquent explanations.  

It really should be common sense:  assuming competence helps shift the thought process and focus from the limitations of a diagnosed disability to the possibilities of the person whom is experiencing the effects of a disability.  

I'll try and explain it a little bit better.  

Imagine two circles, one inside of the other.  The larger, outer circle is the person.  The inner, smaller circle is the part of the person that is experiencing the disability.  The small circle can, but shouldn't determine the competence, or ability to perform a task, function, or skill effectively, of the individual.  The small circle is only a part of the big circle.  They aren't one in the same.  The limitations of the disability contained in the inner circle may or may not affect the competence of the person experiencing the disability, the outer circle.  

If you assume competence, you are giving a person the opportunity to succeed.  Does it mean that he or she will always achieve the desired success?  Not necessarily.  But isn't it more damaging to not provide him or her with the opportunity at all?

If I am told no, I want to know why.  If I am told that something is not possible, I want to know if it has been proven.  If I am told that someone cannot do something, I want to know if the individual has been given the chance to try in a fair, appropriately supported environment.  

Assume competence and use that assumption to guide your advocacy.  Ask yourself, the teachers, the administrators, and the decision makers if the child for whom you are advocating can be given a chance to prove that he or she is capable of stepping up to the task.  

Wednesday, April 14, 2010

Special Education Acronyms

As promised, here is a list of special education acronyms!  This is by no means an exhaustive collection and it has been pulled from many, many resources.

If you have any you would like to add or know of any that should be modified, please feel free to contact me.


Special Education Acronyms (in alphabetical order).
ABA - Applied Behavioral Analysis
ADA - Americans with Disabilities Act
ADD - Attention Deficit Disorder
ADDES - Attention Deficit Disorder Evaluation Scale
ADHD - Attention Deficit Hyperactivity Disorder
ADDH - Attention Deficit Disorder with Hyperactivity
AFDC - Aid to Families with Dependent Children
APA - American Psychological Association
APE - Adaptive Physical Education
ARC - Association of Retarded Citizens
ASHA - American Speech and Hearing Association
AU - Autism
BD - Behavior Disorder
BEAM - Brain Electrical Activity Mapping
BES - Behavior Evaluation Scale
Binet - Stanford Binet Intelligence Test
BIP - Behavior Intervention Plan
BL - Blind
BMP - Behavior Management Plan
CA - Chronological Age
CAP - Corrective Action Plan
CASE - Council of Administrators in Special Education
CEC - Council for Exceptional Children
CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
CP - Cerebral Palsy
CSEF - Center for Special Education Finance
DDK - Developmentally Delayed Kindergarden
DF - Deaf
DF/HH - Deaf/Hard of Hearing
DOE – Department of Education
DSM IV - Diagnostic and Statistical Manual, fourth edition
DTT - Discrete Trial Training
DVR - Division of Vocational Rehabilitation
EBD – Emotionally Behavior Disturbed
EPSDT - Early Periodic Screening, Diagnosis, and Treatment (Medicaid)
ESEA - Elementary and Secondary Education Act
ESL - English as a Second Language
ESY - Extended School Year
ESYP - Extended School Year Program
FAPE - Free Appropriate Public Education
FBA - Functional Behavioral Assessment
FERPA - Family Educational Rights and Privacy Act
FTE - Full-time Equivalent
HH - Hard of Hearing
HI - Hearing Impaired
IAES - Interim Alternative Educational Setting
IDEA - Individuals with Disabilities Education Act
IEE - Independent Educational Evaluation
IEP - Individualized Education Program
IFSP - Individualized Family Service Plan
IHP - Individualized Habilitation Plan
IQ - Intelligence Quotient
ITP - Individualized Transition Plan
LD - Learning Disability
LDES - Learning Disabilities Evaluation Scale
LEA - Local Education Agency
LEP - Limited English Proficiency
LI - Language Impaired
LRE - Least Restrictive Environment
MH - Mentally Handicapped
MR - Mentally Retarded
MRI - Magnetic Resonance Imaging
MDE - Multidisciplinary Evaluation
MDT - Multidisciplinary Team
MS - Multiple Sclerosis
MSW - Master’s Degree in Social Work
NAMI – The National Alliance for the Mentally Ill
NAEP - National Assessment of Educational Progress
NAEYC - National Association for the Education of Young Children
NASBE - National Association of State Boards of Education
NASDSE - National Association of State Directors of Special Education
NCEO - National Center on Educational Outcomes
OCR - Office of Civil Rights
OMB - Office of Management and Budget
OSEP - Office of Special Education Programs
OSERS - Office of Special Education Rehabilitation Services
OHI - Other Health Impaired
OT - Occupational Therapist/Occupational Therapy
PI - Physically Impaired
PIAT - Peabody Individual Achievement Test
PLOP - Present Level of Performance
P.L. 94-142 Public Law 94-142 (reauthorized as I.D.E.A.)
P.P.D. - Pervasive Developmental Disability
PT - Physical Therapist / Physical Therapy
SEA - State Education Agency
SEBD - Seriously Emotionally Behavior Disturbed
SES - Social Economic Status
SH - Severely Handicapped
SLD - Specific Learning Disability
SLI - Speech/Language Impaired
SLP - Speech/Language Pathologist
SST- Student Support Team
TBI - Traumatic Brain Injury
TRO - Temporary Restraining Order
VAKT - Visual/Auditory/Kinesthetic/Tactile
WAIS-R - Wechsler Intelligence Scale for Adults - Revised
WIAT - Wechsler Individual Achievement Test
WISC-III - Wechsler Intelligence Scale for Children - Third Revision
WPPIS - Wechsler Pre-school and Primary Intelligence Scale
WRAT/R - Wide Range Achievement Test-Revised
VH - Visually Handicapped
VI - Visual Impairment
504 - Section 504 of the Rehabilitation Act of 1973

Wednesday, April 7, 2010

What Is FAPE?

If you are just entering the advocacy world, you have probably noticed that there are a lot of acronyms.  IEP, IDEA, FAPE, LRS, ESY, and the list goes on, and on, and on...

I plan on getting an acronym list up for you to help translate what all of this means.

However, I thought that a good starting point would be to explain where the cornerstone of my advocacy work, and all education advocacy work, stems from.

FAPE.  In it's most simplistic form, the four letters stand for Free Appropriate Public Education for students with disabilities.  It is a legal right for individuals with disabilities living in the US to receive a free and appropriate public education.  FAPE is protected under IDEA (yes, another acronym!) which stands for the Individuals with Disabilities Education Act.  It is the law that guarantees educational civil rights for individuals with disabilities.  FAPE (Free Appropriate Public Education) is the fundamental requirement of IDEA (Individuals with Disabilities education Act).

If you would like to see the full explanation on the US Department of Education's website, you can go here.  Additionally, Wrightslaw has a wealth of information available.

When going through my advocacy training, it was explained that FAPE and IDEA were like the foundation of a house that had been put in place by the Federal Government.  This made perfect sense to me.  Think about it: Federal law guarantees educational civil rights for people with disabilities, the foundation of the "home".  Additional requirements and regulations are then instituted on the state and local levels - otherwise known as the walls, roof, etc.

FAPE means something different to every child it protects.  What one child needs may not necessarily work for a second child who has a similar challenges and abilities.  Therefore, it is important that every child with special needs be assessed on an individual basis, and that educators, parents, and advocates work closely together to determine what educational setting and accommodations will optimize the individual's ability to learn.

I know, it sounds like a LOT, right?

Fortunately, the laws provide a lot of room for opportunity as long as the important partners in the child's educational process are willing to take the time to assess, evaluate, and explore options in a thoughtful, organized manner.

FAPE is intended to be "bank blind" meaning that special education and related services are provided to the student at no cost to the parent or guardian.  One of the most common arguments from public educators is that they don't "have the funding" to provide a specific service or accommodation.  This reason alone is why it is critically important that we continue to raise awareness of the financial challenges and work towards identifying problem solving solutions that are facing our public school systems.

FAPE is a legal right.  It provides the Right to Learn for all children who have special needs and unique abilities.

For more information on FAPE, please see the following sources:
Federal Department of Education
The FAPE Site
Special Education Lawers
Understanding Special Education

Georgia Resources:
GA DOE (this will bring up a search page that has the manual available for free download)

Wednesday, March 31, 2010

The #1 Rule of Advocacy: Document Everything

Can you guess what the Cardinal Rule of advocacy is?

I'll give you a hint...

You don't have to know all of the laws or acronyms to be a good advocate for your child or someone else's child.  You don't even have to have finite goals in mind or be able to specify exactly what outcomes you hope to achieve (although this is important later on!)

No, the most important rule of being an effective advocate for yourself, your child, or for whomever you are providing a voice is actually pretty simple.

Document EVERYTHING.

There are several ways to do this.  I'll explain how I do my own personal documentation and provide you with resources that will give you examples of how other people may do it.  At the end of the day, you have to decide what works best for YOU.  It needs to be organized and thorough.  You need to be able to find answers at your fingertips without doing a lot of paper shuffling.

Jennifer's Advocacy Document Organization Technique
Create a binder.  Make sure it's big!  I'm using a 2" binder for a child who has only been in the school system for three years.  Can you imagine how large a high school child's binder(s) would be?!  My binder has dividers for each of the following categories, though not necessarily in the order I have them listed.  I'll explain the categories in more detail below.
  * Emails
  * Letters
  * Testing
  * IEP's
  * Communication Log
  * Policies
  * Notes
  * Minutes

Emails: This is pretty self explanatory.  If you send or receive an email to or from the school, teacher, or pertaining to the student, print it off with all supporting replies.  This is extremely valuable because a) written agreements and communication are very hard (if impossible) to disprove b) everything is time stamped c) you have a history of everything that was "stated".

Letters: As you dive further into advocacy work, you will discover that aside from documentation, letters are the cornerstone of every effective advocate's work.  If you want to see something accomplished, you write a letter.  If you want to confirm something, you write a letter.  If you want to request information, you write a letter.  Having these letters readily available and organized can make your work much easier.    Keep in mind that letters are different than emails, and therefore should have their own special place.  They are generally more formal and "official".

Testing: Again, this one speaks for itself.  Have your testing results and information together in one place.  I put mine in chronological order so that the most recent, pertinent information is on top as soon as I open the tab leaving the older tests towards the back of the section.

IEP's: In case you've just entered the world of advocacy or are still trying to grasp what the acronyms mean, an IEP is an Individualized Education Plan.  IEP's specifically detail the educational plan for a special needs child.  We'll discuss IEP's at length later on.  However, for now, just be sure that you have all IEP's and addendums included in your documentation.  It is helpful to compare IEP's year to year (or even more frequently as needed) when it comes time for the planning process.  You don't want to have to dig to find what you need.

Communication Log: These days, communication takes many forms including text messages, instant messaging, and phone calls/voicemail.  Phone log is sort of my way of saying Document Every Incident, Communication, IM, Text Message, etc.  Write it down.  Note the time and date and as much detail as possible.  

Policies: Unfortunately, there will come a time in every advocate's (and by advocate, I mean volunteer, paid, parent, etc.) experience when it will be necessary to ask for a copy of a stated policy.  This can include a wide range of things.  If you are uncertain about what you are being told, ask for a copy of the policy.  If one is provided, include it in your documentation.  If you ask for one and one is never provided, be sure to include the ask and response (or lack of) in your communication log.  For example, if you request audio record an IEP, and you are told you cannot do so, ask for the document showing the policy stating that audio recording is prohibited in IEP's.

Notes:  I take notes all the time.  They provide me with a roadmap and important reminders.  I will usually review them and use them to convert into minutes from meetings and conferences or use them for my communication log.  I strongly recommend you do the same.  It's a habit that has carried over from college and has proven to be an incredible asset to my advocacy work.  I keep my raw notes (yes, just plain 'ol pen and paper in binder notes) until I am certain that I have captured everything I needed in another place.  Some advocates may not do this; however, I have found that I frequently reference my handwritten notes to help me remember context, etc.

Minutes: Minutes are basically formal notes. I review my notes at the conclusion of a meeting and turn them into a written recording of what has transpired.  My minutes are very comprehensive.  I tend to include mood shifts, tone changes, etc. so that I can remember every detail from a meeting.  They read like a narrative so that at any time I can go back and identify specifics from the meeting.  I have been told that my minutes are so complete and detailed it is as if I had an actual audio recorder sitting in the room.

Here are a few other resources for organizing records.  Please note that I have not extensively reviewed these links.  They are not intended to replace any advice that you may seek from a professional and are only to give you a starting point for organizing your information.

About.com
From Emotions to Advocacy
(more to come...)

Tuesday, March 30, 2010

Hello and Welcome!

If you've stumbled across my little corner of the blogsphere, welcome!

This is one of several blogs I run.  However, The Right to Learn is perhaps the blog that is nearest and dearest to my heart.

Five years ago, I was trained as an education advocate by the Georgia Advocacy Office Parent Leadership Support Project.  I learned all about IEP's, FAPE, 504, IDEA, and a bunch of other acronyms that make very little sense to most of the population!

My training came out of my desire to help those who don't have a voice to help themselves.  However, since the time of my training I have become a mommy to three amazing yet extremely energetic future advocates!  Four of the last five years have been spent rocking babies, changing diapers, and learning how to juggle multiple hats at one time.  While my drive be an advocate for children with special needs did not change, the amount of time I had to devote to all of my passions was greatly diminished and advocating for other children had to temporarily take a back seat.

Several weeks ago, I was approached by a mom who has a child with special needs.  She knew that things with her son's educational needs were not being met but wasn't sure how to go about getting him the services he not only required to thrive, but was entitled to.  After spending time trying to find her an advocate and consulting extensively with my own mentor, I agreed to take on the case myself.

It was the best decision I ever made.

The progress we have made for this child's education has been remarkable in a very short period of time.  It hasn't been easy; in fact, it has been more work than I could have ever imagined.  But the rewards that will come from this work will be fruitful for years to come.  And while the family is thanking me over and over, it is I who should be thanking them.

They have helped me find my purpose once again.